Stanford, California

Senior Research Scholar, Stanford University School of Medicine

Representing: Researchers
Term Ends July 2025

Meghan Halley, PhD, MPH, is a medical anthropologist and health services researcher whose work focuses on ethical issues in the evaluation and implementation of new genomic technologies in rare disease research and clinical care. Her work is driven both by this professional background and by her personal experience as the mother of a child with a rare disease.

She is also a member and co-chair of the Undiagnosed Diseases Network Patient Engagement and Empowerment Resource (UDN PEER), where her son is a current participant. In these various roles, she has observed the many challenges that can arise at the intersection of scientific and patient and family goals. Her interest in working with PCORI stems from her commitment to developing strategies to further advance effective patient-engaged research in rare disease.

    Conflicts of Interest

    As of July 18, 2022:

    • Undiagnosed Diseases Network Foundation, Board Member
    • Undiagnosed Diseases Network Patient Engagement and Empowerment Resource, Volunteer
    • Stanford University School of Medicine, Professor


    Person Type
    Panel / Committee