Michelle Johnston-Fleece, MPH, is Senior Program Officer on the Public and Patient Engagement team at the Patient-Centered Outcomes Research Institute (PCORI). She plays a leadership role in advancing the science of engagement nationally, as well as with international partners. Previously at PCORI, Johnston-Fleece was an Engagement Officer, and managed the patient and stakeholder engagement activities within the Improving Healthcare Systems portfolio of clinical comparative effectiveness research (CER) projects.

Johnston-Fleece previously was a Senior Program Officer at the National Academy of Medicine, where she directed the Care Culture and Decision-making Innovation Collaborative, a multi-stakeholder convening activity that brings together patients, families, clinicians, and technology and communications professionals to promote patient- and family-centered care, and led the Patient and Family Leadership Network, a network of patient and family thought leaders engaged in advisory activities across the health care continuum.

In previous roles, she has served as the director of policy and advocacy at Cancer Support Community (CSC), where she oversaw the policy and advocacy activities at the federal level and in coordination with CSC’s local affiliates across the United States; led the patient advocacy and patient experience improvement efforts for Einstein Healthcare Network, a large, urban, safety net healthcare system in Philadelphia; and was the senior policy and research analyst at the American Board of Internal Medicine and ABIM Foundation, where she was responsible for providing research, policy analysis, writing and project management for numerous ABIM and ABIM Foundation initiatives and spearheaded the organizations’ efforts to engage patients, caregivers, and consumers into program development and multi-stakeholder meetings.

Johnston-Fleece serves on the Academy of Communication in Healthcare Patient Engagement Task Force. In the past, she has served on the Vizient HIIN Patients First Technical Expert Panel, the Board of Directors of the National Coalition for Cancer Survivorship, and the Novartis Oncology External Patient Workgroup. In addition, she wrote the “Caregiving with Confidence” column for Cancer Today, a publication of the American Association for Cancer Research, for more than two years.

Johnston-Fleece holds an MPH in health systems and policy from the UMDNJ School of Public Health (now Rutgers School of Public Health), and received her BA in sociology and media studies from New York University.


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