Phoenixville, Pennsylvania

Chief Patient Officer, Castleman Disease Collaborative Network

Representing: Patients, Caregivers, and Patient Advocates
Term Ends August 2024

Mileva Repasky is the Chief Patient and Development Officer for the Castleman Disease Collaborative Network (CDCN) and (most importantly) mother to one of the youngest Castleman disease patients, Katie. Repasky is passionate about connecting patients, family and friends; fundraising; patient advocacy; and raising awareness.

Repasky will continue to advance the PCORI and CDCN missions by collaborating with the patient, family and friends community; physicians; researchers; various stakeholders; and partners. Repasky is particularly interested in finding new and innovative ways to raise awareness for rare diseases.

Repasky was the Project Engagement Lead for CDCN’s partnership with the Chan Zuckerberg Initiative in 2019, 2020, and ongoing work on drug repurposing.

Repasky graduated from Duquesne University with a BS in Psychology and completed her Master of Science in Psychology with a concentration in Behavioral Health in 2016.

Conflicts of Interest

As of September 7, 2021:

  • None


Person Type
Panel / Committee