Nathan Peck

Nathan Peck is the co-founder and chief executive officer of Cure VCP Disease, Inc., a patient advocacy organization dedicated to driving a cure for valosin-containing protein (VCP) associated multisystem proteinopathy, also known as Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia (IBMPFD). The disease is an adult-onset, hereditary, autosomal dominant disease caused by a mutation of the VCP gene on chromosome 9. It can affect any combination of a patient’s muscles, bones and brain. Peck is a patient with the disease and was officially diagnosed in 2015. His mother, aunt and one uncle are deceased from the disease, and he has one uncle still living with the disease. Peck is retired and on full long-term disability and has quickly grown the awareness and influence of Cure VCP Disease among the research and patient community since 2018. Cure VCP Disease was selected to the Chan Zuckerberg Initiative Rare as One project in November 2021. Peck possesses a Bachelor of Industrial Engineering from the Georgia Institute of Technology and was a Leaders for Global Operations fellow at the Massachusetts Institute of Technology, obtaining a Master of Business Administration and Master of Civil and Environmental Engineering in 2009. He lives in Americus, Georgia and is the proud husband of 22 years to Allison and father of three teenage boys.

Ambassador Interests

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