Years Involved in Patient Centered Research: 5-10 years
Nestelynn Gay has served as a patient advisor with the Henry Ford Health System Patient Engaged Research Council and was an advisor on its PCORI-funded Cancer Precision Medicine engagement project. Since being diagnosed with brain cancer in 2013, she has created patient spaces including a Facebook support group with over 2,500 members. She is currently completing a master of science in administration which she will finish in Spring 2021.
Involvement with PCORI
Engagement: Engaging Patients and Other Stakeholders to Develop a Patient-Centered Research Agenda for Cancer Precision Medicine (PI: Karen Kippen, MS, BS, AAS) - Advisory Panel Member
Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
State State The state where the project originates, or where the primary institution or organization is located. View Glossary