Nestelynn Gay has served as a patient advisor with the Henry Ford Health System Patient Engaged Research Council and was an advisor on its PCORI-funded  Cancer Precision Medicine engagement project.  Since being diagnosed with brain cancer in 2013, she has created patient spaces including a Facebook support group with over 2,500 members. She is currently completing a master of science in administration which she will finish in Spring 2021.

Involvement with PCORI

Engagement: Engaging Patients and Other Stakeholders to Develop a Patient-Centered Research Agenda for Cancer Precision Medicine (PI: Karen Kippen, MS, BS, AAS) - Advisory Panel Member

Ambassador Interests

Health Conditions

Health Conditions

These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them.

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Populations

Populations

PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders.

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Send a request to connect with Nestelynn Gay

PCORI would like to facilitate connections among PCORI Ambassadors and between PCORI Ambassadors and other stakeholders to partner on research projects, engagement initiatives, speaking opportunities and other patient-centered research activities. If you would like to connect with the above-listed PCORI Ambassador, please send a request using the form below.
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