Founder, President and CEO, Parent Project Muscular Dystrophy
Represented: Patients, Caregivers, and Patient Advocates
Patricia Furlong is the Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the largest nonprofit organization in the United States solely focused on Duchenne muscular dystrophy. The group accelerates research, raises voices in Washington, demands optimal care for all young men, and educates the global community.
PPMD’s goal is to end Duchenne, which affects approximately one out of 3,500 boys worldwide and has no cure. Furlong founded the group in 1994 and works in honor of her two sons, Christopher and Patrick.
Furlong served as a member of the Advisory Panel on Rare Disease from Fall 2015 - Spring 2018.
Conflicts of Interest
As of October 27, 2016
- Advisory Panel Member