Paul T. Conway serves as Chair of Policy and Global Affairs and is Immediate Past President of the American Association of Kidney Patients (AAKP), America’s oldest and largest independent kidney patient health education and advocacy organization. Conway has managed kidney disease for nearly four decades, including more than two years on dialysis and, for the past 20 years, as a kidney transplant recipient.
He is actively involved in multiple patient-centered national health care transformation initiatives aimed at increasing the inclusion of patient preference information and patient-reported outcome data across federally-administered and funded programs and evaluation processes. He was recently named by the US Food and Drug Administration as the Chair of the new FDA Patient Engagement and Advocacy Committee for medical devices, and was selected by the National Institutes of Health (NIH) to serve as a member of the External Evaluation Panel for the NIH Kidney Precision Medicine Project. He serves as a Patient Voice Editor for the Clinical Journal of the American Society of Nephrology and is the recipient of a 2017 President’s Medal from the American Society of Nephrology.