Ambassador

Roberta Smith

Board Member of Alagille Syndrome Alliance 
Board Member of Iosco Exploration Trail

Years Involved in Patient Centered Research: 5-10 years
State: Michigan

Roberta Smith does not have previous professional experience with patient-centered outcomes research, but she does have an interest in taking her research involvement to a level that would help her use the patient voice to advance research in Alagille syndrome. Smith got involved with the Ambassador Program as a way to enhance the Alagille Syndrome Alliance’s research roundtable, funded by a Eugene Washington PCORI Engagement Award, and to help facilitate working groups and collect data and outcomes that will help lead research.

Ambassador Interests

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
State State The state where the project originates, or where the primary institution or organization is located. View Glossary

Send a request to connect with Roberta Smith

PCORI would like to facilitate connections among PCORI Ambassadors and between PCORI Ambassadors and other stakeholders to partner on research projects, engagement initiatives, speaking opportunities and other patient-centered research activities. If you would like to connect with the above-listed PCORI Ambassador, please send a request using the form below.
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