PFAnetwork -- Board Member
The Beryl Institute -- Board Member
University of Wisconsin -- Board Member
Rosie Bartel’s experience with patient-centered outcomes research includes participation in a PCORI annual meeting, which she attended because of her involvement with a PCORI-funded University of Wisconsin research grant. Bartel lead a patient advisory group that met with researchers and other stakeholders and did extensive work researching the effect of the patient’s environment on infections. She has continued to support the work of this group of researchers by coordinating the advisory group’s work with a lead researcher. She also acts as a consultant to the university’s Infectious Disease Division. Bartel attended the International Patient and Family Centered Care Conference in 2018 as a PCORI patient. This conference invited PCORI patients to bring a researcher with them and helped her and other university researchers understand how important patient voices are and how to look to patients for input in research projects. Despite not having a medical background, her ability to share her experiences as a patient has been easier because of her background as an educator and educational leader. She strongly believes in the work of PCORI and is proud to represent them as an Ambassador.