Sandy Sufian, MA, MPH, PhD
Associate Professor, Health Humanities and History, Disability Studies, University of Illinois at Chicago, College of Medicine
Represented: Patients, Caregivers, and Patient Advocates
Sandy Sufian, MA, MPH, PhD, a 50-year-old woman with cystic fibrosis (CF), coleads the PCORI-funded Cystic Fibrosis Reproductive and Sexual Health Collaborative (CFReSHC) project with Emily Godfrey, MD, MPH. This collaborative emerged out of a PCORI-funded Pipeline to Proposal award in which Sufian was a core member and principal patient-partner. She has been interested in women’s reproductive issues and their interaction with CF for over 20 years, which inspired the idea, through conversations with Godfrey, for the CFReSHC work.
Sufian is also an Associate Professor at the University of Illinois-Chicago. She teaches within the Department of Medical Education at the University’s College of Medicine and within the Department of Disability and Human Development, at the University’s College of Applied Health Sciences. There she teaches courses on the history of medicine and disability issues. She is also an affiliated faculty member in the School of Public Health and in the History Department. Her research interests include the history of infectious disease, global health, the history of disability/disability studies, and the history of adoption and the family. She received her PhD from New York University and her MPH from Oregon Health and Science University. She trained as an AHRQ postdoc at Kaiser Permanente Center for Health Research in health services research.
In addition to her faculty work, Sufian is the principal investigator for a National Endowment for the Humanities grant to develop health humanities cases for medical trainees. She is also the recipient of an Arnold P. Gold Foundation grant and is co-investigator or consultant on several CF-related grants that have come out of CFReSHC.
Sufian is the author of Healing the Land and the Nation: Malaria and the Zionist Project in Palestine, 1920–1947 (University of Chicago Press, 2008) and Reapproaching Borders: New Perspectives on Israel/Palestine (Rowman Littlefield, 2008). She has published articles in the Bulletin of the History of Medicine, the Journal of the History of Childhood and Youth, and Disability Studies Quarterly. She is currently finishing a book about the history of adoption of children with disabilities in 20th-century America.
Sufian served as a member of the Advisory Panel on Patient Engagement from September 2018 to September 2021.
Conflicts of Interest
As of January 23, 2018
- Advisory Panel Member