Boston, Massachusetts

Chief Executive Officer, National Institute for Children’s Health Quality

Represented: Clinicians
Former Panel Chair

Scott Berns is the President and CEO of the National Institute for Children’s Health Quality (NICHQ), a nonprofit organization that works to improve children’s health, and a co-Founder of The Progeria Research Foundation (PRF), which aims to discover treatments and the cure for Hutchinson-Gilford progeria syndrome and its aging-related conditions.

As Chair of the PRF Board, Berns ensures that PRF is a key force behind the discovery of the progeria gene, and he has developed programs and services to aid both those affected by progeria and the scientists who conduct progeria research. Berns has made multiple media appearances as an expert in perinatal health, and his son Sam and family were featured in an HBO Emmy Award–winning documentary titled Life According to Sam.

Berns a board-certified pediatrician and pediatric emergency physician. He is a Clinical Professor of Pediatrics at the Warren Alpert Medical School of Brown University in Providence, Rhode Island, and a Clinical Professor of Health Services, Policy, and Practice at the Brown School of Public Health. Berns received his bachelor’s and medical degrees from Boston University. He completed his residency in pediatrics at Rhode Island Hospital and completed a fellowship in pediatric emergency medicine at Children’s National Medical Center in Washington, DC. He earned a Master of Public Health with a concentration in health, policy, and management from the Harvard School of Public Health.

At PCORI's fifth Annual Meeting in September 2019, Berns and his wife Leslie Gordon, MD, PhD, presented the Opening Keynote.

Berns served as a member and Chair of the Advisory Panel on Rare Disease from September 2018 to September 2021.

Conflicts of Interest

As of February 13, 2018

  • National Institute for Children’s Health Quality, Employer
  • The Progeria Research Foundation, Volunteer, Board Chair
  • The Progeria Research Foundation, Medical Director, Spouse


Person Type