Stacy Isenbarg Murphy
Stacy Isenbarg Murphy is a primary caregiver to a son with quadriplegic spastic cerebral palsy. She also fosters special needs children, one of whom has a rare genetic disorder. From 2014 to 2017, she served on an advisory panel that looked at care coordination between Partners for Kids and families in Columbus, Ohio. She served more than five years on various patient- and family-centered care advisory panels through Nationwide Children’s Hospital.
These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them.
- Birth and Developmental Disorders
- Genetic Disorders
PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders.
- Individuals with Disabilities
- Individuals with Rare Disease
- Determining the research outcomes that will be measured
- Prioritizing and/or refining research questions