Georgia Southern University - Staff Member
The Sickle Cell Foundation of Tennessee -- Consultant
My Three Sicklers Sickle Cell Foundation, Inc. -- Consultant
Tilicia Mayo-Gamble’s research background is in patient and community-engaged research. She worked for 11 years with sickle cell community-based organizations to incorporate patient feedback into her research. Beginning in 2015, she began efforts to engage patients as partners in her research. While working as a postdoctoral fellow, her mentors received a PCORI Engagement Award which allowed her to co-lead efforts to engage sickle cell patients as research partners. She facilitates training of sickle cell community health ambassadors (health workers) to develop a TN Sickle Cell Disease Network. She currently serves as a patient/caregiver panel review member and as a member of the Rare Disease Advisory Panel. She is a caregiver to a husband with sickle cell disease, who, along with the many sickle cell warriors she represents, is her motivation for advocating for engagement and research efforts to support rare diseases.
Involvement with PCORI
Engagement Award: Tennessee Sickle Cell Disease Network -- Velma Murray, PhD
Member -- Advisory Panel on Rare Disease