Newton, MA

Represented: Patients, Caregivers, and Patient Advocates

As the Director of Strategic Partnerships at the Amyloidosis Research Consortium (ARC), Vanessa Boulanger works with stakeholders to develop innovative programs and collaborative research initiatives. Prior to joining ARC, Boulanger was the Director of Research at the National Organization for Rare Disorders (NORD), where she led the strategic development, growth, and implementation of NORD’s research and scientific activities, developing evidence-informed programs to support the rare disease community. She brings over 15 years of experience addressing health and social inequalities from a range of health and development perspectives to her position at ARC.

Boulanger holds an MSc degree in Global Health and Population from Harvard University and a BA in International Development and Social Change from Clark University.

Boulanger served as a member of the Advisory Panel on Rare Disease from September 2018 to September 2021.

Conflicts of Interest

As of April 27, 2021

  • National Organization for Rare Disorders, Employer (end date April 2021)
  • Amyloidosis Research Consortium, Employer (start date May 2021)


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