Who are Mrs. A and Mr. B?
Mrs. A and Mr. B are people with disabilities who cannot get good health care. Our project is by and for people with disabilities like them.
How does this project work?
Many people working on our project have disabilities. All the leaders of the project are people with disabilities. People with disabilities will work with people without disabilities as equals. The project asks many people about their health care. Some of them will have disabilities and others will not. Some of the people are healthcare workers. What do they all think helps people with disabilities stay healthy? Some people in our project live in city apartments. They will have meetings to talk with each other about health care. Other people use computers. They will type in the computer about health care. They will be able to see what everyone types. It will be like a meeting. We will ask about their illnesses and disabilities. We will learn about their doctors and other caregivers. We will ask if they can get to the doctor’s office. We will ask if all their caregivers talk to each other. We will ask if people can understand their doctors. We will also ask if the doctors give good information. Our project also studies information from thousands of patients who use Medicare and Medicaid. We will look to see if patients who use Medicare and Medicaid are getting the care they need. We want to know if people with disabilities get good health care or not. We will look at types of health conditions, disabilities, and beliefs about health care. We will learn about what people using Medicare or Medicaid think about their health care. We want to find out if people who get good health care stay better able to care for themselves. We will show people with disabilities what we learn about health care. They will help us understand how well health care is working. We will ask for ideas on making health care better.
What will this project find out?
We want to know why it is hard for people with disabilities to get good health care. We want to know if people get worse care as they become more disabled. We want to find out if people with disabilities who get better health care stay healthier and are able to take care of themselves longer.
What will happen because of this project?
We want everyone to know what this project finds out. If people with disabilities make better decisions about getting health care, they will be healthier. Also, we hope to discover ways that health care can be improved for people in the United States.
^ Margaret Stineman, MD was the original principal investigator for this project.