Project Summary

IPFCC will convene the 7th International Conference on Patient- and Family-Centered Care: Partnerships for Care, Interprofessional Education, and Research in New York City, July 25-27, 2016. A featured research track will highlight exemplary partnerships with patients and families in PCOR and CER initiatives. Best practices and resources for preparing patients, families, and researchers to collaborate will be shared. This track for partnerships in research will build on extensive pre-conference outreach to Patient and Family Advisory Councils, other patient and family advisors, consumer organizations, and researchers. This outreach is designed to build capacity for the Councils and researchers to serve as partners in research. Based on the learning from the outreach and the featured track, IPFCC will develop and disseminate practical training materials to build the capacity of other organizations and their patient and family advisory councils to create effective partnerships in planning and conducting research and in disseminating research findings.

The projected output from this project is featured programming at a conference to build capacity and develop strategies for researcher engagement with patient and family advisory councils and other patient and family advisors; and a toolkit with supporting guidance/training materials. 

Project collaborators include the National Partnership for Women & Families; Patient and Family Advisors, Staff and Researchers from the Following Institutions: Essentia Health; H. Lee Moffitt Cancer Center and Research Institute; Middlesex Hospital; NYU Langone Medical Center Hassenfeld Children's Hospital; Ohio State; University Wexner Medical Center; Stanford Health Care; and Vidant Medical Center. 

Project Information

Marie Abraham, MA
Institute for Patient- and Family-Centered Care

Key Dates

June 2017


Project Status
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Last updated: April 8, 2024