This project builds on the work of our PCORI Tier I award. One Hope Centro de Vida Health Center is collaborating with the Office for Community Health at the University of New Mexico to develop capacity for patient-engaged comparative effectiveness research (CER) related to diabetes health for Latinos from low-income households. We have convened a patient advisory board with participation of four Latino diabetes patients and four patient caregivers to work on this project with us.
We have six objectives:
- to build the capacity of our patient partners to better understand the concept of and process for conducting research,
- to submit a full CER proposal to PCORI in May 2015 (if invited following submission of a Letter of Intent in March),
- to update/revise our patient advisory board governance structure,
- to generate a list of potential CER research questions,
- to update/revise our outreach plan and conduct targeted outreach to external stakeholders, and
- to develop and submit a Tier III proposal.
Page-Reeves J, Regino L, McGrew HC, et al., Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project. Journal of Patient Experience (September 2017).