The proposed project will bring together diverse stakeholders (including patients, researchers, and clinicians) to develop the capacity and the infrastructure to conduct patient-centered research on the management and treatment of symptomatic hip and knee osteoarthritis that affects approximately 10% of adults in the United States. This infrastructure will be used to discuss research areas of greatest importance to patients, identify individuals with whom to collaborate, strengthen communications channels, and understand various stakeholder perspectives. We will accomplish this by:
1. Conducting focus groups with patients and their family members
2. Forming an advisory panel and governance structure composed of patients, family members, clinicians, national and local advocacy group representatives, and researchers
3. Creating a website, using web-based surveys to gather patient feedback and using social media to engage patients and promote the community online
4. Organizing a symposium for patients and community members to learn about osteoarthritis management and discuss relevant topics
The Department of Orthopaedics at New York University Langone Medical Center serves hundreds of patients per day from a racially and socioeconomically diverse patient community in New York City. This Tier I PCORI Pipeline to Proposal award will allow our team to engage patients, the community, and other stakeholders from this large and multicultural population to understand the context necessary to develop patient-centered comparative effectiveness research questions for the management and treatment of osteoarthritis.