Individuals with spinal cord injury (SCI), stroke, or traumatic brain injury (TBI) encounter many health and healthcare barriers that impact health decision-making and access to appropriate care. However, there is little known about how these individuals, especially those living in rural underserved communities, or their healthcare providers access relevant health information or if they use PCOR/CER in their health or clinical decision-making. This project will determine what information SCI, TBI, and stroke patients and healthcare providers in rural communities need to make clinical and health decisions and where they access this information. This project will also develop a model for engaging these individuals to participate, utilizing PCOR/CER to develop health-related questions that are relevant to improving their healthcare decision-making and health outcomes.
The projected outputs from this project are determination of the five most important times and sources of health information for making clinical decisions through interviews and workgroups; establishment of the perceived value of PCOR/CER; increased knowledge of PCOR/CER; and establishment of a strategy for engagement in a PCOR/CER collaborative action group.
Project collaborators include The Kentucky Appalachian Rural Rehabilitation Network (KARRN); Kentucky Congress on Spinal Cord Injury; Care Coordination for Community Transitions Program; Appalachian Translational Research Network (ATRN); Appalachian Regional Healthcare; and Community Liaisons.