Project Summary

Despite a policy emphasis on expanding access to dental care for individuals with intellectual and developmental disabilities (IDD), this vulnerable population continues to have significant oral health problems with no known effective oral health preventive or disease management strategies. Given the physical, intellectual, and behavioral challenges associated with IDD, risk-based disease prevention and management, standard home care practices, and preventive factors for oral health require modification to successfully address their needs. Empirical information is needed to identify feasible options to promote oral health in this group and gauge their relative effectiveness. We propose to create a partnership that will bring new voices and perspectives into discussions about potential interventions to improve oral health extending beyond the traditional dental operatory approach to include individual, family and caregiver, and community influences that typically are not considered potential research topics. In a structured and systematic way, we will facilitate a process whereby partnership members work together to create a repository of shared information about oral health influences that can be brought to discussions regarding research questions and design. We have identified representatives of patients and relevant stakeholder communities, including providers, policy makers, and the public, to address these issues as partnership members. At the completion of this process, we will have created a partnership whose members are primed to work together to identify research questions for eventual inclusion in a clinical effectiveness research proposal that addresses the needs of patients with IDD in the context of their lives and circumstances.

View Tier II Award

Project Information

John Morgan, DDS, MS
Tufts University

Key Dates

9 months


Award Type
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: March 4, 2022