Engagement Resources

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Caregivers’ Roles in Research Projects
A PCORnet partner network wants to empower caregivers by engaging them to collect data that may improve outcomes for themselves and patients.

The Role of the Caregiver
Because Alzheimer’s takes away patients’ ability to report on their own health, a PCORnet network is gathering information from both patients and their caregivers.

Alzheimer's Effects on Families
Because research studies have found that caregiving can compromise health, a PCORnet project wants to study how caregivers take care of themselves.

Early Observation in Alzheimer’s
Patients and caregivers are usually the people who pick up the earliest signs of disease, and their observations can greatly impact interventions and outcomes.

Project Information

Ronald Petersen, MD, PhD^
Mayo Clinic
The National Alzheimer's & Dementia Patient & Caregiver-Powered Research Network

Key Dates

March 2019

Study Registration Information

^Glenn E. Smith, PhD, was the original principal investigator for this project.


Has Results
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: March 4, 2022