This project aims to increase the participation of underserved communities of color in comparative effectiveness research and patient-centered outcomes research. We propose a program of training for faith-based community facilitators about the core values and practices of patient-centered outcomes research, and a network of research ministries in faith-based settings to enable engagement. These research ministries will interact with existing ministries in caregiving, health, and cluster engagement discussion groups on specific diseases. Research ministry facilitators will be equipped with tools and activities for research ministry, which can be delivered as a stand-alone program or embedded in existing groups. A flexible program of activities will introduce facilitators to patient-centered outcomes research, increase community capacity to identify faith-based community based health assets, increase likelihood of engaging with health research, and engage community members.
The projected output from this project is the development of a network of research ministry facilitators to engage with PCOR to train their communities.
Project collaborators include Pastors4PCOR; Triedstone Full Gospel Baptist Church; Northwestern University Buehler Center; Rush University Medical Center; John Stroger Hospital; Healthcare Research Associates LLC; Southland Ministerial Health Network; patient stakeholder advisory board members; faith-based entities; and facilitators.
Project Resource: Poster
Project Resource: Presentation
Project Resource: Training Overview
Project Resource: Information Sheet