While the value of meaningful involvement of diverse groups including patients and other stakeholders in research is becoming increasingly recognized, groups attempting to collaborate across traditional boundaries face significant barriers including communication gaps, power differentials, and gaps in knowledge. This project is developing and evaluating a training methodology aimed at addressing these barriers with the goal of creating skilled communities capable of patient-centered outcomes research (PCOR). The project will utilize a unique approach from the Alan Alda Center for Communicating Science to train mixed groups of community stakeholders (patients, family members, advocates, policy makers, industry, payers) and University of New Mexico researchers and clinicians in communication and collaboration skills. It will also develop a shared knowledge about PCOR and use the foundation established in the training to begin developing potential PCORI projects.
The projected outputs from this project are three, three-day communication and collaboration training workshops that focus on specific brain or behavior health disorders to create PCOR projects for the stakeholder teams.
Project collaborators include the Alan Alda Center for Communicating Science; New Mexico Autism Society; New Mexico Chapter of the Alzheimer's Association; New Mexico Aging and Long-Term Care Services Department; The Retreat Healthcare; North Ridge Alzheimer’s Specialty Care; and Albuquerque Public Schools.