Project Summary

In January of 2015, Genetic Alliance joined Harvard Pilgrim Health Care Institute and Duke Clinical Research Institute as a part of the PCORnet Coordinating Center. Genetic Alliance helps meet the network's needs by facilitating coordination among patient-powered research networks, helping them efficiently share existing resources, and increasing their capacity.

Phase II of this project

Project Information

Sharon Terry, MA
Genetic Alliance, Inc.

Key Dates

February 2016

Study Registration Information


Project Status
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: April 16, 2024