Project Summary

Patients with multiple chronic conditions receive care that is fragmented and inefficient that often does not address what matters to them. A major cause is that the clinicians caring for a patient concentrate on their own sets of disease-specific outcomes and not on the health goals and care preferences of patients. However, very little research has focused on a key issue central to patient goals-centered care: How can clinicians translate disease-specific care into care focused on patients’ health outcome goals and preferences? This two-year project will organize patients, caregivers, researchers, clinicians, policymakers and healthcare systems representatives to develop a research agenda, and network to implement it, focused on goals-directed care.

More on This Project

This project focuses on a series of conferences that will facilitate the patient and caregiver partnership organized to plan a research agenda. It includes consensus about the conferences on patient-centered research and goals directed care. These partnerships are organized from the networks of PFCC partners and the patients/caregivers on the planning committee. This is evidenced by the links to project deliverables listed below as minutes of conference calls and web-ex conferences, preliminary consensus on the conference program and speakers, preliminary draft outline of future white papers, and a consensus statement. These deliverables also include documentation of outreach efforts by planning committees and collaborating organizations.

Project Resource: Planning Committee Agenda and Minutes: January - April 2016

Project Resource: Planning Committee Agenda and Minutes: April - August 2016

Project Resource: Patient Priority Care Research Agenda Meeting Materials - November 2016

White Paper: Patient Priorities Care Research Agenda

Project Information

Caroline Blaum, MD, MS
New York University

Key Dates

24 months


Project Status
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: March 4, 2022