One of PCORI’s goals is to improve the methods that researchers use for patient-centered outcomes research. PCORI funds methods projects like this one to better understand and advance the use of research methods that improve the strength and quality of comparative effectiveness research.
This research project is in progress. PCORI will post the research findings on this page within 90 days after the results are final.
What is the research about?
Patient-reported outcome measures, or PROMs, are surveys that ask patients how they feel and what activities they can do. These surveys might focus, for example, on how well people sleep or how much pain interferes with daily life. Researchers publish articles in scientific journals reporting on tests of how accurate the measures are. However, not all researchers report their research in the same way. These reporting differences can make it hard for other researchers to understand how well the PROMs capture how patients feel and what activities patients can do.
In this study, the research team is developing guidance for researchers on how to report the results of testing PROMs.
Who can this research help?
Researchers can use this guidance when reporting their studies investigating the properties of PROMs.
What is the research team doing?
In the first part of the study, the research team is searching for information about how researchers can report on studies testing PROMS. The team is also looking for information about problems that may come up when researchers don’t report enough information or the right type of information about their methods. The research team is writing a summary to describe existing ways of reporting investigations of PROMs.
In the second part of the study, the research team is inviting a group of people who have done research on PROMs to read the summary. The group includes researchers and others with expertise in PROMs. The group is ranking the importance of each type of reporting described in the summary. Finally, the research team is using these results to develop a guide for other researchers. The guide can help researchers improve the way they report their methods in the journal articles they write.
Research methods at a glance
|Goal||To create a guide for researchers on how to report tests on PROMs|
|Approach||Part 1: literature review
Part 2: conduct a Delphi process with 3 rounds