This research project is in progress. PCORI will post the research findings on this page within 90 days after the results are final.
What is the research about?
Patients from racial and ethnic minority groups in the United States more often report negative experiences with health care, such as discrimination from providers, than do non-Hispanic white patients. Doctors may not realize how past experiences shape their patients’ views. When doctors don’t understand what their patients want and why, patients may not get the treatment that is right for them.
In this study, the research team is developing a survey doctors can use to ask patients about their past experiences with care and treatment preferences and to plan treatment with their patients.
Past studies have shown that white patients often get better diabetes and mental health care than do non-white patients. For this reason, the research team chose to study patients who have type 2 diabetes or depression.
Who can this research help?
Results may help patients from racial/ethnic minority groups with depression or type 2 diabetes get health care that meets their needs.
What is the research team doing?
This study has three parts. In the first part, the research team is developing a survey doctors can use to learn about racial/ethnic minority patients’ past experiences with care and about their treatment preferences. Some of the survey questions ask patients to make complex choices, such as choices between different types of treatment. After testing and refining the survey in the Boston area, the team is surveying 1,500 non-Hispanic white, African American, and Hispanic/Latino people with depression or type 2 diabetes across the United States. The team wants to see whether responses are different across race and ethnicity.
In the second part of the study, the team is checking the survey questions by interviewing 40 people, from each racial/ethnic group, who took the survey. The team is asking people if the survey questions capture what matters most to them. Then, the team members are refining the survey based on what they learn from the interviews.
In the third part of the study, the team is finalizing the survey and developing instructions for using it in the clinic setting. The team is interviewing clinicians and care coordinators to learn how they would use the survey to make treatment plans with their patients and learn ways to improve the survey.
Patients with type 2 diabetes or depression, researchers, and healthcare providers are helping to develop survey and interview questions, conduct interviews, and analyze and interpret results.
Research methods at a glance
|Goal||To develop a survey that clinicians can use to learn about patients’ preferences and prior experiences of care and incorporate that information into treatment plans|
- Jonathan Delman, PhD, JD, MPH
- Ms. Valeria Chambers and Ms. Catherine Quinerly of the Transformation Center
Other Stakeholder Partners
- Ms. Ziva Mann
- Chong-Min Fu-Sosnaud, ScM
- Danny McCormick, MD, MPH