Pediatric-to-adult transitional care research focuses on the need and value of transition programs for youth with chronic health conditions, but few transition programs focus on bilingual, bicultural communities. During Tier I and Tier II, our combined partnership identified that addressing the transition of adolescents with chronic health conditions to adult health care is a critical need. Our goal in Tier III is to continue to collaborate and to complete a comparative effectiveness research proposal that examines the transitional care services and outcomes of most importance to young adult patients and caregivers, and to evaluate the comparative effectiveness of ongoing in-person approaches versus eHealth approaches (i.e., web-based platforms accessible by smartphones, tablets, and personal computers).
We will design a research project for diverse participant populations, including those with multiple chronic diseases, low health literacy/numeracy, and limited English proficiency as well as members of racial and ethnic minority groups and low-income groups. The project design will focus on patient needs as young adults mature in their independent disease self-management and learn to communicate with their healthcare team. It is important to engage teens with chronic health conditions at this critical juncture in patient care, when they need to be accepting responsibility for self-care. The proposal design reflects input from patients, caregivers, and other stakeholders, and combines the expertise of patients, caregivers, and stakeholders with national leaders in care-transition research. Anticipated outcomes include transitional care services tools for community-based organizations, patients, caregivers, clinicians, and other stakeholders.
*All proposed projects, including requested budgets and project periods, are approved subject to a programmatic and budget review by PCORI staff and the negotiation of a formal award contract.