Comprehensive dissemination of research, policies, and guidelines through patient engagement is essential to translating the best evidence into clinical practice with the ultimate outcome of improving health. If patients do not understand the conceptual framework for a health condition/treatments, they will be unable to engage in meaningful conversations with their provider or choose an appropriate treatment based on their preferences or needs.
The Patient and Clinician Engagement (PaCE) program offers a solution by fostering a diverse community of patients, researchers, and primary care providers with knowledge of the unique features of patient-centered outcomes research related to primary care. Through a curriculum consisting of trainings held in conjunction with national research conferences, international webinars, and local symposia, PaCE’s outreach is limitless. The project team aims to expose the program to a vast audience, disseminating its message and tools in an impactful way. To do this, the team will support the activities of PaCE to ensure continuity and stability of the program within North American Primary Care Research Group (NAPCRG); disseminate knowledge, skills, and tools of patient engagement gained by PaCE participants by developing an online platform of learning materials and forums, multi-directional communication, and national and local PaCE events; continue to engage a broader group of participants in order to grow and expand the PaCE community to patient and community organizations such as PCORI Pipeline to Proposal awardees, clinician groups, academic centers, practice-based research networks, and Clinical and Translational Science Award (CTSA) members.
Program activities and outcomes will include engaging the 25-member PaCE Council as a national patient and clinician advisory group; developing PaCE curriculum materials; hosting one pre-conference/year attached to a national meeting, i.e., NAPCRG or Practice-Based Research Network Annual Conference to engage 20 primary care physicians and 20 patients; developing three to six PaCE local symposia engaging 30-50 participants each; creating one interactive online platform accessible to PaCE members and one website open to the public; developing a strong social media presence through Facebook, Twitter, etc.; expanding PaCE membership and recruiting new dyads.
To date, PaCE has directly involved over 400 patients, clinicians, researchers, and stakeholders through trainings, webinars, and other events, and encompasses the broader NAPCRG membership with potential to reach over 1,000 members. PaCE 2.0 will be led by the PaCE Council, who will be engaged as leaders and partners in expanding the PaCE program and the dissemination of knowledge and tools. PaCE will utilize its strategic placement as a program within NAPCRG, as well as broaden the reach into local communities as participants begin impactful dissemination. This will ensure a diversified community as the team grows PaCE.
NAPCRG collaborates administratively with the Society of Teachers of Family Medicine. PaCE will also work closely with the National Research Network to collaborate on pre-conferences and outreach. The team will work with the Council of Academic Family Medicine, which includes the Association of Departments of Family Medicine, and the Association of Family Medicine Residency Directors, along with the American Academy of Family Physicians to partner in continuing the project’s growth. Academic institutions with Clinical and Translational Science Awards present an opportunity to reach a wide range of community-academic partnerships, patients, and community members interested in the proposed training opportunity.