Post-operative care does not prepare cancer survivors for ostomy self-management, behavior change, psychological support, or healthy living, which are necessary to ensure optimal health-related quality of life. This proposed Ostomy Self-Management Telehealth program, led by ostomy nurses with ostomy “peer-buddies” and patient/caregiver education and support, uses telehealth delivery to improve patients’ ability to participate, especially for elderly, rural, inner-city, or poor-health cancer survivors with ostomies. The study will compare patients participating in the telehealth program with patients receiving usual care.
The first goal of the study, via our enhanced communication techniques, is to determine if the program improves patient ostomy self-management knowledge and skills and health-related quality of life, and if this improvement continues six months after completing the program. This will be determined using surveys to be completed before the program starts, at the end of the program sessions, and at six months after the end of the program. We think patients participating in the program will have greater improvement than patients receiving usual care, and continue that improvement six months after the end of the program.
The second goal of the study is to determine the differences in patients’ use of family resources, use of medical care, and ostomy-related family financial burden between the program participants and patients receiving usual care. This information will also be gathered using a survey. We think patients participating in the program will use fewer family resources and medical care than patients receiving usual care, as they use the knowledge and skills learned in the program to better manage their ostomy.
^ Robert S. Krouse, MD, MS was affiliated with Arizona Board of Regents, University of Arizona when this project was funded.
- The Trustees of the University of Pennsylvania
- City of Hope/Beckman Research Institute
- Yale University
Other Stakeholder Partners
- Ostomy Nurses:
- Nancy J. Tallman, RN, BSN, WOCN
- Lesley Hoffman, MSN, CNS, AOC
- Lucinda Pinchot, RN, BSN
- Peer Ostomates:
- Sue Reynolds
- Roger Iverson
- Frank Sova
- Marcie Felner