The purpose of this contract is to promote patient-centered research in the Puget Sound Asthma Coalition (PSAC). Our aims include the following:
- Strengthening relationships between researchers, patients, and stakeholders, particularly in communities that have been underrepresented in research
- Building capacity for community partnerships to create research questions and submit patient-centered outcomes research proposals that can be considered for PCORI funding
- Engaging partners in the research process and in the development of dissemination and implementation plans
- Establishing an infrastructure for patients, caregivers, and other stakeholders to increase comparative effectiveness research (CER) information and engagement in research, dissemination, and evaluation
These aims will be accomplished by encouraging parent participation in coalition meetings. Relationships between researchers, patients, and stakeholders will be strengthened through attendance at PCORI-hosted trainings and participation in the PCORI Asthma Evidence to Action Network. We will build capacity to conduct patient-centered CER by initiating a program of research focused on improving parent–provider communication. We will engage partners in the research process by developing the other two topics prioritized by parents and involving a third Spanish-speaking parent group. We will create parent project teams in which parents will be supported by PSAC partners, refine their research topic, design and conduct related activities, and seek additional funding support. Dissemination will occur through the PSAC meetings, website, newsletter, conferences, and state and regional partnerships. In sum, PSAC is the infrastructure through which patients, caregivers, and other stakeholders will have opportunities to engage in CER-related research, dissemination, and evaluation.