Skip to main content
Patient-Centered Outcomes Research Institute
Patient-Centered Outcomes Research Institute
  • Blog
  • Newsroom
  • Find It Fast
  • Help Center
  • Subscribe
  • Careers
  • Contact Us

PCORI

Patient-Centered Outcomes Research Institute

Search form

  • About Us
    Close mega-menu

    About Us

    • Our Programs
    • Governance
    • Financials and Reports
    • Procurement Opportunities
    • Our Staff
    • Our Vision & Mission
    • Contact Us

    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

    Find It Fast

    Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

    Subscribe to PCORI Email Alerts

    Sign up for weekly emails to stay current on the latest results of our funded projects, and more.

  • Research & Results
    Close mega-menu

    Research & Results

    • Explore Our Portfolio
    • Research Fundamentals
    • Research Results Highlights
    • Putting Evidence to Work
    • Peer Review
    • Evidence Synthesis
    • About Our Research

    Evidence Updates from PCORI-Funded Studies

    These updates capture highlights of findings from systematic reviews and our funded research studies.

    Journal Articles About Our Funded Research

    Browse through a collection of journal publications that provides insights into PCORI-funded work.

    Explore Our Portfolio of Funded Projects

    Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.

  • Topics
    Close mega-menu

    Topics

    • Addressing Disparities
    • Arthritis
    • Asthma
    • Cancer
    • Cardiovascular Disease
    • Children's Health
    • Community Health Workers
    • COVID-19
    • Dementia and Cognitive Impairment
    • Diabetes
    • Kidney Disease
    • Medicaid
    • Men's Health
    • Mental and Behavioral Health
    • Minority Mental Health
    • Multiple Chronic Conditions
    • Multiple Sclerosis
    • Obesity
    • Older Adults' Health
    • Pain Care and Opioids
    • Rare Diseases
    • Rural Health
    • Shared Decision Making
    • Telehealth
    • Transitional Care
    • Veterans Health
    • Women's Health

    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

  • Engagement
    Close mega-menu

    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
    • Influencing the Culture of Research
    • Engagement Awards
    • Engagement Resources
    • Engage with Us

    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

    It enables those new to health research or patient-centered research to learn more about the research process.

  • Funding Opportunities
    Close mega-menu

    Funding Opportunities

    • What & Who We Fund
    • What You Need to Know to Apply
    • Applicant Training
    • Merit Review
    • Awardee Resources
    • Help Center

    PCORI Funding Opportunities

    View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

    Tips for Submitting a Responsive LOI

    Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

    PCORI Awardee Resources

    These resources can help awardees in complying with the terms and conditions of their contract.

  • Meetings & Events
    Close mega-menu

    Meetings & Events

    • Upcoming
    • Past Events

    PCORI Webinar: February 2, 2pm ET

    Hear from PCORI leaders about ways to get involved in PCOR, improvements to our funding opportunities, and more. Register

    Confronting COVID-19: A Webinar Series

    Learn more about the series and access recordings and summary reports of all six sessions.

    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

You are here

  • Research & Results
  • Explore Our Portfolio
  • Women and Parkinson's: Teams to ...

Women and Parkinson's: Teams to Advance Learning and Knowledge (TALK)

Project Summary  

In Parkinson’s disease (PD), there is evidence of differences in women’s symptoms, medication side effects, and access to care. There are pockets of disparate information, with little uptake by women with PD and the medical community. There is no coordinated national effort for the identification, implementation, and dissemination of evidence-based findings to help women, clinicians, and scientists be better informed as it relates to the development of research questions and healthcare decisions. Women and Parkinson’s Disease: Teams to Advance Learning and Knowledge (Women and PD TALK) would create the first nationally coordinated and supported team-based infrastructure for identifying, implementing, and disseminating patient-centered outcomes research (PCOR) of importance to women with PD. The objectives of this project are to: 

  • Identify a prioritized, patient-centered women-with-Parkinson’s research agenda
  • Increase knowledge among women with PD, clinicians, and researchers about what is known about current and emerging evidence-based findings related to women with Parkinson’s
  • Create and support local multidisciplinary teams in identifying, implementing, and disseminating PCOR for women with PD
  • Create a sustainable infrastructure that can serve as a model for the Parkinson’s community as a whole as well as other chronic diseases

The long-term objectives of Women and PD TALK are to increase the number of comparative effectiveness studies conducted that address the needs and priorities of women and PD and ultimately help women with PD and medical professionals make better-informed healthcare decisions.

The Women and PD TALK project will: utilize a multi-stakeholder co-led project oversight and management structure that includes women living with PD and a physician clinical researcher; create and convene a Women and PD TALK national team comprised of key national decision makers and drivers of Parkinson’s research; create and convene 10 Women and PD TALK regional teams co-led by a woman with PD, a physician clinician/researcher, and a non-physician health professional; collaborate with the regional team co-leads in organizing 10 Women and PD TALK regional forums; and convene a Women and PD TALK national forum to create a prioritized, patient-centered women-and-PD research agenda and disseminate this agenda and recommendations. The project will also create a toolkit to provide a roadmap for organizing regional forums that accomplish the aims of disseminating current and emerging research findings, obtaining real-world input on research needs and priorities, and building a community and team with the intent of ongoing collaboration.

More on this Project  

PCORI Stories

Improving Life for Women with Parkinson's Disease
By 2020 nearly one million Americans will be living with Parkinson’s disease (PD). While the neurogenerative disorder is traditionally thought to affect mostly men, many women also live with the disease. Yet, they find their voices underrepresented in PD research. A Eugene Washington PCORI Engagement Award supported the Parkinson Foundation’s efforts to change that by creating a Parkinson’s research and care agenda for women.

Videos

Improving Outcomes and Access to Care for Women with Parkinson’s Disease
Megan Feeney, MPH, shares how the Parkinson’s Foundation is using their PCORI Eugene Washington Engagement Award to figure out why women with Parkinson’s Disease are not accessing care as often as men with this condition.

Project Details

Project Status
Completed
Project Lead
Veronica Todaro, MPH
Project Period
27 months
Organization
Parkinson's Disease Foundation
Year Awarded
2016
State
New York
Project Type
Engagement Award Project, Dissemination Project
Project Budget
$248,705
Page Last Updated: 
March 4, 2020

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
  • Our Vision & Mission
  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
  • What You Need to Know to Apply
  • Applicant Training
  • Merit Review
  • Awardee Resources
  • Help Center

Meetings & Events

February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021
February 11
Advisory Panel on Patient Engagement Winter 2021 Meeting

PCORI

Footer contact address

Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

Subscribe to Newsletter

Twitter Facebook LinkedIn Vimeo

© 2011-2021 Patient-Centered Outcomes Research Institute. All Rights Reserved.

Privacy Policy | Terms of Use | Trademark Usage Guidelines | Credits | Help Center