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Patient-Centered Outcomes Research Institute

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  • Research & Results
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  • Central New York Citizens Research an...

Central New York Citizens Research and Action Network (CNY-CAN) - Tier III

Project Summary  

CNY-CAN’s vision is to enable citizens, patients, caregivers, clinicians, researchers, and health and social service organizations to guide aging-related research, participate in research and project teams, be champions for patient-centered research, help translate research into practice, and help sustain CNY-CAN as a community resource. CNY-CAN’s focus is on developing a comparative effectiveness research (CER) study on improving communication between providers and patients with Alzheimer’s and other dementias and their caregivers. Under Tier III, CNY-CAN will finalize a multi-stakeholder research team and study advisory committee that will engage stakeholders in identifying one, out of a list of three, CER question to develop as a competitive Letter of intent. The three prospective CER questions align with PCORI’s broad Funding Announcement for communication and dissemination research, and include the use of digital communication by patients and caregivers to convey questions and track progress, the use of tele-education and shared medical appointments with rural primary care clinicians and their patients and caregivers, and the role of peer mentors in improving communication.

F.O.C.U.S. Greater Syracuse and SUNY Upstate Medical University are the co-leads for the Tier III contract, bringing together SUNY Upstate’s research and clinical resources with F.O.C.U.S.’s unique expertise as a citizen engagement organization that, for 20 years, has been a neutral convener of citizens, organizations, and government working together to promote inclusive, sustainable decision making on a range of civic issues. Other founding partners that will remain engaged under Tier III are the Southwest Community Center (grassroots community partner) and HealtheConnections (health services and population health partner).

View Tier II Award

Project Details

Project Lead
Jim Keib
Project Period *  
12 months
Organization
F.O.C.U.S. Greater Syracuse, Inc.
Year Awarded
2017
State
New York
Project Type
Pipeline to Proposal, Tier III
Project Budget *  
$50,000

*All proposed projects, including requested budgets and project periods, are approved subject to a programmatic and budget review by PCORI staff and the negotiation of a formal award contract.

Page Last Updated: 
May 30, 2018

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
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  • Putting Evidence to Work
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  • About Our Research

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
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  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
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Meetings & Events

February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021
February 11
Advisory Panel on Patient Engagement Winter 2021 Meeting

PCORI

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Patient-Centered Outcomes
Research Institute

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Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

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