Project Summary

This research project is in progress. PCORI will post the research findings on this page within 90 days after the results are final.

What is the research about?

Lesbian, gay, bisexual, and transgender, or LGBT, people are more likely than others to have health problems such as depression and substance abuse. Knowing about patients’ sexual orientation and gender identity, or SOGI, can help clinicians, such as doctors and nurses, give care that respects the preferences, needs, and values of LGBT patients. However, clinicians may not know when or how to collect SOGI information; patients may also be uncomfortable bringing it up. Electronic health records don’t have a standard way for clinicians to collect this information.

In this study, the research team wants to know whether giving multiple trainings to healthcare providers on how to collect and talk about SOGI information affects LGBT patients’ care.

Who can this research help?

Healthcare administrators and clinicians can use findings from this study when considering ways to collect SOGI information.

What is the research team doing?

The research team is working with staff at 12 community health centers around the country. At the start of the study, health center staff and administrators fill out a form online. They answer questions about their center’s policies and services for LGBT patients and whether their center collects SOGI information. The form also asks about the centers’ readiness to collect SOGI information.

The research team is dividing the centers into two groups by chance. In one group, the team is holding three trainings for administrators and staff at each center on providing care that respects LGBT patients’ preferences, needs, and values. Trainings also cover how to collect SOGI information and make it part of that center’s electronic health record system. Staff at centers in the other group can attend an optional one-time webinar that covers the same topics.

To learn whether healthcare centers improve how often they collect SOGI information from patients, the research team is reviewing patient records for two years. The team is also looking at whether patients receive care for health issues that affect LGBT communities, such as substance use.

Patients and clinicians are working with the research team to plan and conduct the study.

Research methods at a glance

Design Elements Description
Design Randomized controlled trial
Population Adults ages 18 years and older who are healthcare staff members or patients at participating clinical sites
  • Training for clinicians, administrators, and nonclinical staff on providing care for LGBT patients
  • Optional webinar

Primary: documentation of SOGI status, behavioral health and substance use assessments, weight or BMI, Hepatitis A and B vaccinations, mammograms and Pap tests

Secondary: documentation of referral(s) (if referral is indicated) for behavioral health, tobacco counseling and weight control, HIV screening, bacterial sexually transmitted infection screening, anal Pap screening

Timeframe 2-year follow-up for primary outcomes

Project Information

Kenneth Mayer, MD
Fenway Community Health Center
Comparative Effectiveness Research to Improve the Health of Sexual and Gender Minority (SGM) Patients through Cultural Competence and Skill Training of Community Health Center (CHC) Providers and Non-clinical Staff

Key Dates

November 2017
May 2023

Study Registration Information


Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary
Intervention Strategy Intervention Strategies PCORI funds comparative clinical effectiveness research (CER) studies that compare two or more options or approaches to health care, or that compare different ways of delivering or receiving care. View Glossary
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: January 20, 2023