Project Summary

Despite a policy emphasis on expanding access to dental care for individuals with intellectual and developmental disabilities (IDD), this vulnerable population continues to have significant oral health problems. Given the physical, intellectual, and behavioral challenges associated with IDD, risk-based disease prevention and management, home care practices, and preventive factors for oral health require modification to successfully address their needs. Our partnership proposes to design a clinical effective research study using a chronic disease management approach shown to be effective for early childhood caries. This model will be modified to develop preventive and disease management strategies to improve the oral health of adults with IDD. Our partnership will bring new voices and perspectives into discussions about potential interventions to improve oral health extending beyond the traditional dental operatory approach to include individual, family and caregiver, and community influencers that typically are not considered populations for potential research topics. We will use a structured and systematic approach based on the scientific literature to create a repository of shared information about oral health influences to bring to discussions regarding the research design. We have identified patient representatives and representatives of relevant stakeholder communities, including providers, policy makers, and the public, to speak to these issues as partnership members. We have a partnership primed to work for a successful comparative effectiveness research proposal that addresses the needs of patients with IDD within their lives and circumstances.

View Tier II Award

Project Information

John Morgan, DDS, MS
Tufts University

Key Dates

12 months


Award Type
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: November 10, 2022