Native Hawaiian and other Pacific Islanders (NHPI) are among the fastest-growing racial/ethnic groups in the United States. Although population-based health data for NHPI are scarce, reports suggest NHPIs face elevated risks for cardiovascular disease, cancer, diabetes, poor health, and mortality across the life course. The causes and possible solutions for these inequities remain understudied. Equally concerning is the dearth of research among NHPI communities and especially NHPI-related research that incorporates community-based participatory research (CBPR) and patient-centered outcomes research (PCOR) methodologies, which are known to be effective in underrepresented populations.
This project addresses these NHPI health research inequities by strengthening the research infrastructure and PCOR capacity of a large and diverse Asian and Pacific Islander community and its anchor health center in urban Honolulu. Kōkua Kalihi Valley Comprehensive Family Services (KKV) is a community health center that offers a broad array of clinical and community services to more than 10,000 patients from nine locations.
This PCORI proposal builds upon an organizational research infrastructure assessment completed by KKV and its community stakeholders in 2016. The project objective: Increase the capacity of community stakeholders and their anchor health center (KKV) to lead effective PCOR that contributes productively to the larger body of NHPI health equities research, can be translated into better health interventions locally, and that helps alleviate the extreme health disparities in the NHPI community.
Aim 1: Increase the capacity of the organizational research advisory committee (ORAC) to operate effectively.
Aim 2: Recruit and train a community advisory board—consisting of at least 12 stakeholders—in CBPR and PCOR methodologies. The project team will use a modified version of the University of Minnesota’s Community-Campus Partnerships for Health (CCPH) curriculum. Stakeholders will be recruited from among KKV patients identified as leaders in their respective communities.
Aim 3: Train 80 percent of KKV staff and all 14 KKV programs using a tailored version of the CCPH curriculum; increase staff buy-in and participation in PCOR, through guided discussions led by the project lead and stakeholder co-investigators linking practical programmatic challenges to PCOR methodologies and potential projects.
Aim 4: Design two PCOR interventions addressing NHPI health needs based on input from mentors, the ORAC, KKV staff, and at least 12 trained stakeholders.
Aim 5: Disseminate lessons learned, techniques, practices, tools, and outcomes with other researchers and organizations in Hawai’i and beyond.