Final Research Report
This project's final research report is expected to be available by February 2024.
Peer review of PCORI-funded research helps make sure the report presents complete, balanced, and useful information about the research. It also assesses how the project addressed PCORI’s Methodology Standards. During peer review, experts read a draft report of the research and provide comments about the report. These experts may include a scientist focused on the research topic, a specialist in research methods, a patient or caregiver, and a healthcare professional. These reviewers cannot have conflicts of interest with the study.
The peer reviewers point out where the draft report may need revision. For example, they may suggest ways to improve descriptions of the conduct of the study or to clarify the connection between results and conclusions. Sometimes, awardees revise their draft reports twice or more to address all of the reviewers’ comments.
Peer reviewers commented and the researchers made changes or provided responses. Those comments and responses included the following:
The reviewers noted that while this methods-focused project was executed well, the report was hard to follow and contained a number of concepts and statistical approaches that would not be known to the average scientific audience. The researchers revised their report to include more summaries and examples to better describe the research to scientists who were not experts in this field.
The reviewers requested additional information on the engagement activities for this highly technical project. In particular, they asked the researchers to provide more detail about the focus groups they employed to better understand the aspects of privacy-preserving record linkage (PPRL) that patients found most concerning and most important, and to help develop educational materials that could inform other patients about PPRL. The researchers added details about the topics discussed at the focus groups and how they used the findings from these groups.
Conflict of Interest Disclosures
Study Registration Information
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