Skip to main content
Patient-Centered Outcomes Research Institute
Patient-Centered Outcomes Research Institute
  • Blog
  • Newsroom
  • Find It Fast
  • Help Center
  • Subscribe
  • Careers
  • Contact Us

PCORI

Patient-Centered Outcomes Research Institute

Search form

  • About Us
    Close mega-menu

    About Us

    • Our Programs
    • Governance
    • Financials and Reports
    • Procurement Opportunities
    • Our Staff
    • Our Vision & Mission
    • Contact Us

    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

    Find It Fast

    Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

    Subscribe to PCORI Email Alerts

    Sign up for weekly emails to stay current on the latest results of our funded projects, and more.

  • Research & Results
    Close mega-menu

    Research & Results

    • Explore Our Portfolio
    • Research Fundamentals
    • Research Results Highlights
    • Putting Evidence to Work
    • Peer Review
    • Evidence Synthesis
    • About Our Research

    Evidence Updates from PCORI-Funded Studies

    These updates capture highlights of findings from systematic reviews and our funded research studies.

    Journal Articles About Our Funded Research

    Browse through a collection of journal publications that provides insights into PCORI-funded work.

    Explore Our Portfolio of Funded Projects

    Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.

  • Topics
    Close mega-menu

    Topics

    • Addressing Disparities
    • Arthritis
    • Asthma
    • Cancer
    • Cardiovascular Disease
    • Children's Health
    • Community Health Workers
    • COVID-19
    • Dementia and Cognitive Impairment
    • Diabetes
    • Kidney Disease
    • Medicaid
    • Men's Health
    • Mental and Behavioral Health
    • Minority Mental Health
    • Multiple Chronic Conditions
    • Multiple Sclerosis
    • Obesity
    • Older Adults' Health
    • Pain Care and Opioids
    • Rare Diseases
    • Rural Health
    • Shared Decision Making
    • Telehealth
    • Transitional Care
    • Veterans Health
    • Women's Health

    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

  • Engagement
    Close mega-menu

    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
    • Influencing the Culture of Research
    • Engagement Awards
    • Engagement Resources
    • Engage with Us

    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

    It enables those new to health research or patient-centered research to learn more about the research process.

  • Funding Opportunities
    Close mega-menu

    Funding Opportunities

    • What & Who We Fund
    • What You Need to Know to Apply
    • Applicant Training
    • Merit Review
    • Awardee Resources
    • Help Center

    PCORI Funding Opportunities

    View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

    Tips for Submitting a Responsive LOI

    Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

    PCORI Awardee Resources

    These resources can help awardees in complying with the terms and conditions of their contract.

  • Meetings & Events
    Close mega-menu

    Meetings & Events

    • Upcoming
    • Past Events

    January 2021 Board of Governors Meeting

    The Board approved funding for a new research study relating to kidney health and a new funding allocation for PCORnet. Learn more

    Confronting COVID-19: A Webinar Series

    Learn more about the series and access recordings and summary reports of all six sessions.

    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

You are here

  • Research & Results
  • Explore Our Portfolio
  • Open Data Roundtable Series: Sharing ...

Open Data Roundtable Series: Sharing and Utilizing Data to Enhance and Protect Health and Well-Being

Project Summary  

COVID-19-Related Project Enhancement

The enhancement to this project will identifying how experts and stakeholders outside of government can work to improve social determinants of health data that is critical to research and may enable better prediction and management of the course of COVID-19. The team will continue its collaboration with partners and stakeholders to apply an engagement methodology to the same kinds of health research challenges they have been addressing, but with a specific focus on COVID-19 and the critical role of data on social determinants of health.

Enhancement Award Amount: $57,994

Health and medical progress depends on the ability to share and use data on a wide range of issues, ranging from food safety and drug effectiveness to patient treatment outcomes and public health indicators. While the U.S. Department of Health and Human Services (HHS) manages a huge amount of data, there are many obstacles to sharing and using this data in ways that allow its full value to be realized.

The Office of the Chief Technology Officer (CTO) at the U.S. Department of Health and Human Services (HHS) and the Center for Open Data Enterprise (CODE) are cohosting a series of three roundtables for experts inside and outside of government to find ways to improve how health data is shared and utilized for the public good.

This roundtable series will convene a broad range of stakeholders across multiple levels of government, the private sector, and the research community to improve health data sharing for the public good. Each roundtable is designed to help build a community that can advance health data sharing in different ways. Participation will be by invitation only to ensure the most productive mix of perspectives and expertise. The roundtables will each feature keynotes, lightning talks, and breakout sessions to identify challenges and opportunities and make specific recommendations. The informational and instructional materials developed as part of each roundtable, including briefing papers and summary reports, will be used for broader outreach and stakeholder engagement through PCORI’s networks.

This project will be focused on three main objectives:

  • Find more effective ways to share health data within the federal government, with state and local governments, and with the public
  • Recommend priorities for sharing high-value government data for health research and applications
  • Provide key stakeholders and networks with information and guidance on health data sharing

More on this Project  

Project Website

Project Resource: Roundtable Summary Report

Project Resource: Briefing Paper Using SDOH Data to Fight COVID-19 and Support Recovery Efforts

Project Details

Project Status
Awarded; In progress
Project Lead
Paul Kuhne, BA, MA
Project Period
23 months
Organization
The Center for Open Data Enterprise
Year Awarded
2018
State
District of Columbia
Project Type
Engagement Award Project
Funding Announcement
COVID-19-Related Project Enhancement
Project Budget
$302,139
Page Last Updated: 
December 4, 2020

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
  • Our Vision & Mission
  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
  • What You Need to Know to Apply
  • Applicant Training
  • Merit Review
  • Awardee Resources
  • Help Center

Meetings & Events

January 21
Cycle 1 2021 Broad PFA Applicant Town Hall
February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021

PCORI

Footer contact address

Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

Subscribe to Newsletter

Twitter Facebook LinkedIn Vimeo

© 2011-2021 Patient-Centered Outcomes Research Institute. All Rights Reserved.

Privacy Policy | Terms of Use | Trademark Usage Guidelines | Credits | Help Center