In the United States, over 6.5 million people have a medical diagnosis of heart failure. Heart failure requires constant management to prevent bothersome symptoms and complications and poorer quality of life. However, many people with heart failure and their family caregivers do not know how or what to do to best manage this condition. These individuals frequently make appointments and drive to see their health providers or go to the emergency room if they cannot get an appointment.
With this research study, we want to know if individuals with heart failure can be better cared for using real-time internet technologies, such as video calls for visits with healthcare providers and continuous electronic monitoring in place of in-person visits. We want to learn how people with heart failure that use internet technologies compare to others with heart failure who do not use these internet technologies and instead make appointments and drive to see their provider or go to the emergency room, which is usual care. By comparing these two methods of medical care, we are hoping to determine if individuals with heart failure using technologies manage the disease as well or better than those who do not use these technologies. If people do as well or better using these technologies, we could decrease trips to the healthcare providers’ offices and thus decrease the burden and improve daily life for individuals with heart failure and their caregivers.
We also want to find out which people with heart failure are better able to manage their disease using the internet technologies as we do not know if age, educational level, and other characteristics will be important. Once we know this, we will provide this information to hospitals (healthcare systems), insurers, and policy makers.
This study has the potential to help people with heart failure and their families to learn better ways to care for themselves, reduce related complications, and improve their daily lives. To do all these things, we are inviting individuals with heart failure and their caregivers to participate in this study. We are also asking other people in the community and hospitals to help us by serving on our Public Advisory Board. This Board will provide advice on how to accomplish our goals of improving health care and decreasing burden for people with heart failure, their families, and their communities.
*All proposed projects, including requested budgets and project periods, are approved subject to a programmatic and budget review by PCORI staff and the negotiation of a formal award contract.