Background: The mission of PCORI is to help people make well-informed healthcare decisions driven by high-integrity, evidence-based research guided by patients and other healthcare stakeholders. A challenge to realizing this vision is that research results that can improve care are often not disseminated effectively, undermining adoption at the delivery level. In the primary care space, there are additional challenges. There is no central home for primary care research—including clinical findings and health services research (HSR)—that spans primary care specialties. In PCC’s prior Engagement Award (EA), the project team analyzed the makeup and interests of its diverse audiences with respect to how they wish to receive research information. The next logical step is to identify the most important primary care (PC) PCOR/CER and HSR results and to explore different ways of engaging key stakeholders in disseminating these select, high-impact results.
Proposed Solution to the Problem: PCC will curate and identify the most impactful primary care research results—both clinical (PCOR/CER) and HSR—and focus on trying different ways to engage its diverse stakeholders in grappling with and disseminating those results to their diverse networks. PCC is proposing to partner on this project with NAPCRG, which has vast experience in PC research and dissemination strategies, including getting input from patients about research priorities and an annual process for crowdsourcing the highest-impact research results (research “pearls”). A PCC research dissemination (RD) group, with input from a broader PCC journal club, will inform the selection of articles to receive focused engagement and dissemination treatment related to distinct audiences. For example, PCC will also work with patient leaders to guide the work. PCC’s curation of relevant PCOR/CER results, combined with seminal articles in the PC payment and delivery reform space, will create a fully rounded “hub” for PC research.
- Conduct a high-level literature review that includes PCOR/CER and HSR in order to identify select, recent findings most relevant for focused dissemination to the PC community—including researchers, various types of clinicians, patients/consumers, policy makers, and advocates. Work with NAPCRG to conduct the review.
- Convene a research-dissemination workgroup to inform research translation and dissemination that would enhance accessibility of the results and engagement with the findings across diverse audiences, including patients. Work closely with NAPCRG and key patient groups to do so.
- Via a journal club, engage stakeholders in discussions about select articles and how the results can be effectively disseminated to various stakeholders in primary care.
- Bridge research silos within PC and engage researchers in topics relevant to patients and clinicians.
- Enhance the PC research community by providing select resources to: support the implementation of evidence-based best practices in routine care; inform policy deliberations and decisions; and enhance patient engagement and shared decision making.
Activities: The project will start with a modified evidence review to identify a base of research relevant to PC. Initial work will also include convening a research-dissemination workgroup with key leaders in PC and a journal club. With input from journal club discussions about what articles are most compelling, the research group will utilize that expertise to select PCOR/CER and HSR results—which may include infographics, research summaries, or educational sessions for tailored audiences. Results from the team’s previous EA showed that infographics, educational sessions, and targeted e-newsletters were the most favored ways of receiving research updates. The team will explore whether a journal club and a standing research group enhance engagement across key stakeholders with respect to understanding and using the research results. PCC expects to increase the reach as well as the applicability of the research results by leveraging networks of those participating in the RD group and journal club.
Projected Outcomes and Outputs: In the short term, the PCORI EA will enable PCC to conduct a high-level review of PCOR/CER and HSR evidence that can help to advance primary care. The most significant findings identified will be featured on PCC’s website, and key articles will be translated to target specific populations.
In the medium term, PCC will convene stakeholders (work group and journal club) invested in primary care research in order to help identify the highest-impact research results, engage the stakeholders in discussion about the results, and to learn from and engage the stakeholders in disseminating those results to their networks. In the long term, PCC hopes that the research and related resources created through this project will effectively guide future primary care research, expedite uptake of evidence-based best practices, help patients and other stakeholders make informed healthcare decisions, including in their use of primary care services, and inform policy makers.
Patient and Stakeholder Engagement Plan: PCC intends to connect with a variety of stakeholders in diverse ways. First, PCC has partnered with NAPCRG, which has in-depth experience in research/research dissemination, for the literature review and for convening and managing the research workgroup. PCC will also have a designated patient/consumer adviser to guide the project and ensure that everything from the literature review to the workgroup and its treatment of findings takes the patient perspective into account. PCC will engage a variety of additional stakeholders in the primary care community through the research dissemination group, journal club, and through diverse communication methods. Most of the subscribers are various clinicians and patient/consumer groups, which are the two main groups PCC aims to engage. PCC will also be tailoring communications about research results for policy makers, who can in turn use this evidence-based research to inform policy decisions and proposals.
Project Collaborators: North American Primary Care Research Group (NAPCRG): Since 1972, NAPCRG’s members have been committed to producing and disseminating new knowledge from all disciplines relevant to primary care. With international reach and vision, NAPCRG’s annual conferences and meetings, attended by over 1,500 people, are the premier forums for presenting new knowledge in primary care and advances in research methodology. NAPCRG is committed to providing a nurturing, informative, and inspiring environment for all stakeholders in primary care. NAPCRG has been a leader in community-engaged research, and has held multiple conferences and other events on patient engagement.
Over the past six years, NAPCRG has developed and maintained a robust membership of patients and clinicians through a series of three PCORI Eugene Washington Engagement Awards. This network of knowledgeable primary care stakeholders within NAPCRG are primed and ready for selecting and disseminating relevant PCOR, CER, and HSR. NAPCRG engages with a network of researchers, clinicians in practice, and consumer-advisors. Together, PCC and NAPCRG will tap these diverse stakeholder networks to build the membership of the RD and JC groups to ensure varied perspectives are considered as strategies for improved dissemination of primary care research are developed. As part of the process, the team aims to develop parallel treatments for selected articles for a clinical and a patient audience, respectively.