Skip to main content
Patient-Centered Outcomes Research Institute
Patient-Centered Outcomes Research Institute
  • Blog
  • Newsroom
  • Find It Fast
  • Help Center
  • Subscribe
  • Careers
  • Contact Us

PCORI

Patient-Centered Outcomes Research Institute

Search form

  • About Us
    Close mega-menu

    About Us

    • Our Programs
    • Governance
    • Financials and Reports
    • Procurement Opportunities
    • Our Staff
    • Our Vision & Mission
    • Contact Us

    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

    Find It Fast

    Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

    Subscribe to PCORI Email Alerts

    Sign up for weekly emails to stay current on the latest results of our funded projects, and more.

  • Research & Results
    Close mega-menu

    Research & Results

    • Explore Our Portfolio
    • Research Fundamentals
    • Research Results Highlights
    • Putting Evidence to Work
    • Peer Review
    • Evidence Synthesis
    • About Our Research

    Evidence Updates from PCORI-Funded Studies

    These updates capture highlights of findings from systematic reviews and our funded research studies.

    Journal Articles About Our Funded Research

    Browse through a collection of journal publications that provides insights into PCORI-funded work.

    Explore Our Portfolio of Funded Projects

    Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.

  • Topics
    Close mega-menu

    Topics

    • Addressing Disparities
    • Arthritis
    • Asthma
    • Cancer
    • Cardiovascular Disease
    • Children's Health
    • Community Health Workers
    • COVID-19
    • Dementia and Cognitive Impairment
    • Diabetes
    • Kidney Disease
    • Medicaid
    • Men's Health
    • Mental and Behavioral Health
    • Minority Mental Health
    • Multiple Chronic Conditions
    • Multiple Sclerosis
    • Obesity
    • Older Adults' Health
    • Pain Care and Opioids
    • Rare Diseases
    • Rural Health
    • Shared Decision Making
    • Telehealth
    • Transitional Care
    • Veterans Health
    • Women's Health

    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

  • Engagement
    Close mega-menu

    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
    • Influencing the Culture of Research
    • Engagement Awards
    • Engagement Resources
    • Engage with Us

    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

    It enables those new to health research or patient-centered research to learn more about the research process.

  • Funding Opportunities
    Close mega-menu

    Funding Opportunities

    • What & Who We Fund
    • What You Need to Know to Apply
    • Applicant Training
    • Merit Review
    • Awardee Resources
    • Help Center

    PCORI Funding Opportunities

    View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

    Tips for Submitting a Responsive LOI

    Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

    PCORI Awardee Resources

    These resources can help awardees in complying with the terms and conditions of their contract.

  • Meetings & Events
    Close mega-menu

    Meetings & Events

    • Upcoming
    • Past Events

    January 2021 Board of Governors Meeting

    The Board approved funding for a new research study relating to kidney health and a new funding allocation for PCORnet. Learn more

    Confronting COVID-19: A Webinar Series

    Learn more about the series and access recordings and summary reports of all six sessions.

    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

You are here

  • Research & Results
  • Explore Our Portfolio
  • Urban Health Alliance Patient Centere...

Urban Health Alliance Patient Centered Research Collaborative

Project Summary  

Background: Jacksonville, Florida has a large urban area with a predominantly Black population that experiences major health disparities. UFHealth-Jacksonville serves as the safety-net hospital for this urban core, where poor outcomes are common due to diabetes and other chronic diseases. In 2018, the Urban Health Alliance of Jacksonville was formed to reduce health disparities using a multi-sector, social-determinants-focused, evidence-based approach. However, efforts to incorporate patient involvement have been fragmented and inconsistent.

Proposed Solution: Build capacity to promote the adoption and expansion of PCOR/CER conducted by the alliance by forming a patient-centered research collaborative (PCRC).

Objectives: Provide technical and organizational support to the alliance to convene patients, stakeholders, and community leaders to identify and develop initiatives to reduce health disparities; create a sustainable organizational structure to implement initiatives to reduce health disparities; adapt group decision-making processes with patient/community partners to elicit priority research questions to guide PCOR/CER; create guidelines to incorporate PCOR/CER knowledge/tools within the alliance; and provide the infrastructure for the collection and sharing of data.

Activities: The project team will conduct listening sessions with patients, community members, providers, and other stakeholders to identify key barriers that they believe impact the ability to achieve health equity in this community; solicit solutions to improve health equity and to determine readiness to conduct PCOR/CER; develop the PCRC using a group consensus approach to develop the knowledge, competencies, and abilities of patients, providers, and community stakeholders to be meaningful partners in research; recruit and train citizen scientists using the citizen scientist curriculum developed by UF Clinical and Translational Science Institute; and build a health disparities data center to collect and house health disparities data and reports generated by UF and community members.

Outcomes/Output:

  • Completion of stakeholder listening sessions and dissemination of findings from listening sessions
  • Report assessing the feasibility and readiness to build research capacity to conduct PCOR/CER
  • List of patient-generated priority research areas generated from the listening sessions
  • Formation of a PCRC that is a community partnership for stakeholder-engaged research
  • Development of governance guidelines for a transparent and open process for operating the PCRC
  • Implementation of citizen scientist training program
  • Development of research questions to be studied
  • Health disparities data center available on the website

Patient and Stakeholder Engagement Plan: The project team will engage its clinical and community stakeholders comprised of more than 20 community organizations affiliated with the alliance to recruit individuals to the listening sessions. The team will conduct community listening sessions within key neighborhoods that exhibit predictors of health disparity. During these sessions, the team will identify individuals who may be interested in participating on the PCRC as well as receive recommendations from community partners. Members of the PCRC will collaborate and share leadership in all phases of research development.

Project Collaborators: Alliance community partners, patients, researchers, and providers at UFHealth and other healthcare institutions.

Project Details

Project Status
Awarded; In progress
Project Lead
Lori Bilello, PhD, MBA, MS, BS
Project Period
24 months
Organization
University of Florida College of Medicine - Jacksonville
Year Awarded
2020
State
Florida
Project Type
Engagement Award Project
Project Budget
$248,794
Page Last Updated: 
January 6, 2021

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
  • Our Vision & Mission
  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
  • What You Need to Know to Apply
  • Applicant Training
  • Merit Review
  • Awardee Resources
  • Help Center

Meetings & Events

January 21
Cycle 1 2021 Broad PFA Applicant Town Hall
February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021

PCORI

Footer contact address

Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

Subscribe to Newsletter

Twitter Facebook LinkedIn Vimeo

© 2011-2021 Patient-Centered Outcomes Research Institute. All Rights Reserved.

Privacy Policy | Terms of Use | Trademark Usage Guidelines | Credits | Help Center