Project Summary

Background: Asian Americans are the most rapidly growing racial group of older Americans at risk of Alzheimer’s Disease and Related Dementias (ADRD), experiencing great health inequities due to language barriers, lack of knowledge, and lack of culturally appropriate services. Research with Korean American ADRD caregivers indicate that Korean American caregivers and patients have limited ADRD knowledge and skills on how to identify patient-centered goals. Furthermore, Korean American caregivers silently suffer health risks, feeling obligated to care for their older parents at all costs due to cultural stigma and traditional values (e.g., filial piety). In addition, Korean Americans often do not have advanced directives. Moreover, in previous community meetings, Korean American caregivers indicated that they want to learn more how to stay “cognitively healthy” as they age, prevent ADRD, and get more education on caregiving. Increased knowledge and awareness of ADRD care/prevention and advance care planning will reduce health inequities among the Korean American community and encourage them to engage in PCORI projects.

Proposed Solution to the Problem: The project team proposes to disseminate PCORI findings about dementia caregiving and advanced care planning to help increase the knowledge of Korean American stakeholders (e.g., ADRD patients, caregivers, providers, community-based organizations) so they can adopt and use the new evidence to better care for themselves and their family members or patients. The project’s Korean American community partners—Somang Society and Asian American Resource and Information Network, Inc. (AARIN) —have been successful in creating culturally responsive messaging based on cognitive-behavior theory. The proposed solution is achievable as this logic and the Knowledge-Attitude-Behavior (KAB) model are based in cognitive-behavior theory. PCORI findings will be disseminated through Korean-language media, prints (how-to 1-pager), zoom, YouTube, and Facebook Live presentations in the United States.

Objectives: The goal of the proposed PCORI dissemination project, “Koreans Invested in Making Caregivers Health Important (KIMCHI),” is to help improve the knowledge, attitudes, and behaviors (KAB) of Korean American caregivers and other stakeholders about ADRD prevention/care, advanced care planning, and potential future PCORI participation.

Activities: Evidence from four PCORI articles will be disseminated to Korean American stakeholders. Findings from PCORI research will be used to educate and foster community discussions about ADRD caregiving, and to dispel stigma/fear to make people feel safe and comfortable about advanced care planning. Three dissemination strategies will be used to increase Korean American stakeholders’ engagement in research, including PCORI, in the long-term: 1) increase reach of evidence (ethnic media, social media); 2) increase people’s motivation to use/apply evidence (workshops/meetings with experts/trusted leaders); and 3) increase people’s ability to use/apply evidence (how-to-materials and training about Advanced Care planning).

Projected Outcomes and Outputs: The expected KIMCHI project outcomes and impact include:
a) Short-term (during the PCORI-funded project): increase the reach of evidence via ethnic media (60K people) and social media (500 clicks); collect 200 responses via social/ethnic media. Based on a 5-point Likert scale, 70% will give a score of 3 or greater in satisfaction (attitude).

b) Short-term & Medium-term (0-2 years post-project period): increase people’s motivation to use/apply evidence: 4 annual online presentations (400 people). 70% will indicate that they learned something new (knowledge).

c) Long-term (3+ years post-project period): 65% will indicate a change in behavior by identifying at least one technique/strategy that they plan to adopt to improve their health, or an interest to engage in future PCORI community engagement or research participation (behavior).

d) Short-term & Long-term: Increase people’s ability to adopt evidence: create a 2-page how-to document; put copies at libraries, senior/community/Alzheimer’s centers, email/mail & message via KakaoTalk (Korean message app) to 5K members in Somang Society’s & AARIN’s databases (knowledge & behavior).

Patient and Stakeholder Engagement Plan: Stakeholders include Korean American community members (ADRD patients, caregivers), providers, community organizations, policy makers, and researchers that serve Korean Americans. Input from Korean American stakeholders in previous community meetings and research studies will be incorporated into this proposed project and LOI. Suggestions include holding community meetings so people can learn more about ADRD, address fear and concerns, develop a Google group address for people to ask questions and get ideas, have opportunities to socialize and build support network. Stakeholders will be invited to join the proposed activities. Partners/participants will be asked to give feedback at the completion of their participation. Perspectives/interest on future PCORI activities will also be elicited.

Project Collaborators: Dr. Van Ta Park, Professor at the University of California, San Francisco (UCSF) will lead this project. Dr. Eun Jeong Lee from the Asian American Resource and Information Network, Inc. (AARIN) and Dr. Hye-Won Shin from the Somang Society are the community partners that will collaborate on KIMCHI.

Project Information

Van Park, BA, BS, MPH, PhD
The Regents of the University of California, San Francisco
$250,000

Key Dates

24 months
2022

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Project Status
State State The state where the project originates, or where the primary institution or organization is located. View Glossary
Last updated: July 15, 2022