PCORnet® is a large, nationally representative “network of networks” funded by PCORI to improve the nation’s capacity to efficiently conduct definitive patient-centered health research, particularly patient-centered comparative clinical effectiveness research (CER). PCORI is engaged in ongoing monitoring and evaluation efforts to promote continuous improvement and inform its decision-making with respect to PCORI strategies and investments for PCORnet. One component of these evaluation activities is a commissioned assessment, carried out by NORC at the University of Chicago, to assess user experience during Phase 3 of PCORnet.
In alignment with PCORI’s Board-approved strategies to Leverage PCORnet® to Advance PCORI’s National Priorities for Health and Evaluate PCORnet Performance, the objectives of the assessment are to:
- Assess experiences of PCORnet users (i.e., investigators using PCORnet, Front Door users and research funding organizations supporting research that uses PCORnet).
- Assess experiences of PCORnet® Network Partners (i.e., patient partners involved in governance and research that uses PCORnet, Coordinating Center, Clinical Research Network (CRN) leads and key staff and CRN site principal investigators).
- Understand awareness and perception of PCORnet among potential users (e.g., PCORI applicants and awardees who have not used PCORnet resources).
- Hold a virtual, public convening to share findings from the assessment and discuss future opportunities for PCORnet.
To meet these objectives, NORC is conducting qualitative and mixed-methods data collection (i.e., interviews and questionnaires) and a virtual convening.
The final report will be made available upon completion.
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PCORnet® Stakeholder Convening -- July 26, 2023
On July 26, 2023, NORC at the University of Chicago, in collaboration with PCORI, hosted a half-day, virtual convening to capture input from the PCORnet® research community with respect to 1) PCORnet performance and 2) opportunities to advance PCORnet in service of advancing PCORI's National Priorities for Health. The convening included rich discussions with a robust and diverse 11-person panel that had representation across various stakeholder groups and included over 60 attendees.