Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol
JMIR Research Protocols
April 2017
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Full Citation
Khodyakov D, Kinnett K, Grant S, Lucas A, Martin A, Denger B, Peay H, Coulter I, Fink A. Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol. JMIR Res Protoc. 2017 Apr 28;6(4):e57. doi: 10.2196/resprot.6902. PubMed PMID: 28455279; PubMed Central PMCID: PMC5429434.
Tags
Journal Article Type
- Paper Resulting From PCORI-Funded Research Study
Journal Article Topics
- Detailed Description of Engagement in Health Research
Journal Publication Name
- JMIR Research Protocols
Literature Type
- Engagement
Stakeholder Types
- Caregivers
- Patients