Patient-Centered Outcomes Research Institute

PCORI’s Response to COVID-19

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About Us
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About Us
Fact Sheets: Learn More About PCORI

Download fact sheets about our work, the research we fund, and our programs and initiatives.

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Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

Subscribe to PCORI Email Alerts

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Research & Results
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Research & Results
Evidence Updates from PCORI-Funded Studies

These updates capture highlights of findings from systematic reviews and our funded research studies.

Journal Articles About Our Funded Research

Browse through a collection of journal publications that provides insights into PCORI-funded work.

Explore Our Portfolio of Funded Projects

Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.
Topics
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Topics
Featured Topic: Women's Health

Learn more about the projects we support on conditions that specifically or more often affect women.
Engagement
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Engagement
Engagement Tools and Resources for Research

This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

Explore Engagement in Health Literature

PCORI has developed a new tool that enables searching for published articles about engagement in health research.

Using the PCORI Engagement Rubric

It provides general guidance and suggestions for engagement compliance and engagement strategies in the research process.
Funding Opportunities
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Funding Opportunities
PCORI Funding Opportunities

Learn about open and upcoming funding announcements and how to apply.

Tips for Submitting a Responsive LOI

Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

PCORI Awardee Resources

These resources can help awardees in complying with the terms and conditions of their contract.
Meetings & Events
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Meetings & Events
- Upcoming
- Past Events
Board of Governors Meeting

Watch the webinar recording or view the presentation slides from the Board's May 5 meeting.

2019 PCORI Annual Meeting

Watch recordings of all sessions and view the presentations from the meeting.

Confronting COVID-19: A Webinar Series for Hospitals and Health Systems

Learn more about the series and access recordings and summary reports of all six sessions in the series.

Annals of The New York Academy of Sciences

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

September 2016

Full Citation:

Wang S, Jiang X, Singh S, Marmor R, Bonomi L, Fox D, Dow M, Ohno-Machado L. Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States. Ann N Y Acad Sci. 2016 Sep 28. doi: 10.1111/nyas.13259. [Epub ahead of print] PubMed PMID: 27681358.

View Journal Publication

Publications may either be freely available or require a fee to view (or access) on the journal’s website.

Article Type

Paper Resulting From PCORI-Funded Research Study

Literature Type

PCORI Research

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

Related PCORI-Funded Project