Patient-Centered Outcomes Research Institute

About Us
Close mega-menu
About Us
Fact Sheets: Learn More About PCORI

Download fact sheets about out work, the research we fund, and our programs and initiatives.

Find It Fast

Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

Subscribe to PCORI Email Alerts

Sign up for weekly emails to stay current on the latest results of our funded projects, and more.
Research & Results
Close mega-menu
Research & Results
Evidence Updates from PCORI-Funded Studies

These updates capture highlights of findings from systematic reviews and our funded research studies.

Journal Articles About Our Funded Research

Browse through a collection of journal publications that provides insights into PCORI-funded work.

Explore Our Portfolio of Funded Projects

Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.
Topics
Close mega-menu
Topics
Featured Topic: Women's Health

Learn more about the projects we support on conditions that specifically or more often affect women.
Engagement
Close mega-menu
Engagement
Engagement Tools and Resources for Research

This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

Explore Engagement in Health Literature

This tool enables searching for published articles about engagement in health research.

Research Fundamentals: A New On-Demand Training

It enables those new to health research or patient-centered research to learn more about the research process.
Funding Opportunities
Close mega-menu
Funding Opportunities
PCORI Funding Opportunities

View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

Tips for Submitting a Responsive LOI

Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

PCORI Awardee Resources

These resources can help awardees in complying with the terms and conditions of their contract.
Meetings & Events
Close mega-menu
Meetings & Events
- Upcoming
- Past Events
January 2021 Board of Governors Meeting

The Board approved funding for a new research study relating to kidney health and a new funding allocation for PCORnet. Learn more

Confronting COVID-19: A Webinar Series

Learn more about the series and access recordings and summary reports of all six sessions.

2020 PCORI Annual Meeting

Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

Annals of The New York Academy of Sciences

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

September 2016

Full Citation:

Wang S, Jiang X, Singh S, Marmor R, Bonomi L, Fox D, Dow M, Ohno-Machado L. Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States. Ann N Y Acad Sci. 2016 Sep 28. doi: 10.1111/nyas.13259. [Epub ahead of print] PubMed PMID: 27681358.

View Journal Publication

Publications may either be freely available or require a fee to view (or access) on the journal’s website.

Article Type

Paper Resulting From PCORI-Funded Research Study

Literature Type

PCORI Research

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

Related PCORI-Funded Project