Category 7: Data Networks as Research-Facilitating Structures
Learning Objectives
Cognitive: Explain data-integration strategies; State methods used to assess the risk of patient reidentification; Define existing intellectual property policies in the context of the National Patient-Centered Clinical Research Network (PCORnet); Outline the advantages and disadvantages of a common data model; Compare best-of-breed data harmonization methods with a set of heterogeneous data sources; Describe data governance and the identity management and authentication of individual researchers for accessing data; Recognize the complexity of standardized terminologies used by various PCOR data sources.
Attitudinal: Appreciate the need for data-integration strategies to increase the feasibility and impact of PCOR; Commit to safeguarding protected health information (PHI) by utilizing appropriate reidentification risk-management methods; Value the development of effective intellectual property policies that can ease the dissemination of PCOR solutions to the wider population.
Skills: Apply the minimal requirements of best-practice de-identification methods contained in the Health Insurance Portability and Accountability Act (HIPAA) guidelines; Select standardized terminologies that fit with various PCOR data types; Choose suitable metadata annotation tools; Use an appropriate PCOR data network for a given research project.
Learning Modules
This category contains the curriculum Introduction and ten main modules. Learn about the instructors for this curriculum.
- Introductory Lecture: Prepared and presented by Jodi Segal, MD, MPH
- Learning Modules: Prepared by Hadi Kharrazi, MD, PhD, and Dan Ford, MD, MPH; Presented by Hadi Kharrazi, MD, PhD
Module 1: Introduction
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Module 2: Objectives
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Module 3: Overview of Data Networks
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Module 4: Semantic Interoperability
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Module 5: Architecture for Data Networks
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Module 6: Patient Privacy and Confidentiality
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Module 7: Governance
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Module 8: Case Study—PCORnet
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Module 9: Case Study—Others
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Module 10: Key Take-Home Points and Additional Resources
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Category 7 Self-Assessment
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Posted: February 2016
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