Explore Our Portfolio of Funded Projects

(If you would like more detailed information about research projects PCORI has funded, please contact [email protected])

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Displaying 1 - 10 of 27
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Project Title Project Status State Project Type

A Multiple Sclerosis Patient-Powered Research Network - Phase I

Accelerated Cure Project for Multiple Sclerosis
Robert McBurney, BSc, PhD
 PCORnet: Phase I completed; Phase II in progress Massachusetts PCORnet: Patient Powered Research Networks (PPRN) Phase I

The Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) Consortium - Phase I

Duke University
Laura Schanberg, MD
 PCORnet: Phase I completed; Phase II in progress North Carolina PCORnet: Patient Powered Research Networks (PPRN) Phase I

PI Patient Research Connection: PI-CONNECT - Phase I

Immune Deficiency Foundation
Kathleen Sullivan, MD, PhD
 PCORnet: Phase I completed; Phase II in progress Maryland PCORnet: Patient Powered Research Networks (PPRN) Phase I

ImproveCareNow: A Learning Health System for Children with Crohn's Disease and Ulcerative Colitis - Phase I

Cincinnati Children's Hospital Medical Center
Peter Margolis, MD, PhD
 PCORnet: Phase I completed; Phase II in progress Ohio PCORnet: Patient Powered Research Networks (PPRN) Phase I

American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT Network) - Phase I

University of South Florida
Rebecca Sutphen, MD
 PCORnet: Phase I completed; Phase II in progress Florida PCORnet: Patient Powered Research Networks (PPRN) Phase I

Arthritis Patient Partnership with Comparative Effectiveness Researchers (AR-PoWER) - Phase I

Global Healthy Living Foundation
Seth Ginsberg, BS
 PCORnet: Phase I completed; Phase II in progress New York PCORnet: Patient Powered Research Networks (PPRN) Phase I

Community-Engaged Network for All (CENA) - Phase I

Genetic Alliance, Inc.
Sharon Terry, MA
 PCORnet: Phase I completed; Phase II in progress District of Columbia PCORnet: Patient Powered Research Networks (PPRN) Phase I

The COPD Patient-Powered Research Network - Phase I

COPD Foundation, Inc.
Richard Mularski, MD, MS
 PCORnet: Phase I completed; Phase II in progress Florida PCORnet: Patient Powered Research Networks (PPRN) Phase I

Phelan-McDermid Syndrome Data Network - Phase I

Phelan-McDermid Syndrome Foundation
Megan O'Boyle, BA
 PCORnet: Phase I completed; Phase II in progress Florida PCORnet: Patient Powered Research Networks (PPRN) Phase I

The DuchenneConnect Patient-Report Registry Infrastructure Project - Phase I

Parent Project Muscular Dystrophy
Holly Peay, MS
 PCORnet: Phase I completed; Phase II in progress New Jersey PCORnet: Patient Powered Research Networks (PPRN) Phase I