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Sage L, Russo ML, Byers PH, Demasi J, Morris SA, Puryear LN, Fulton DS, Shalhub S; Vascular Ehlers-Danlos Syndrome Research Collaborative. Setting a research agenda for vascular Ehlers-Danlos syndrome using a patient and stakeholder engagement model. J Vasc Surg. 2020 Feb 27. pii: S0741-5214(20)30152-X. doi: 10.1016/j.jvs.2019.12.043. [Epub ahead of print] PubMed PMID: 32115322.

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