The objective of this study was to develop a decision support tool (DST) for parents of young children with differences/disorders of sex development and their healthcare providers, including doctors, nurses, genetic counselors, and social workers.
Project page: Helping Caregivers of Children with Differences/Disorders of Sex Development Decide on Treatment
Principal Investigator: David E. Sandberg, PhD
Organization: University of Michigan at Ann Arbor
Original project title: Decision Support for Parents Receiving Genetic Information about Child's Rare Disease
HSRProj ID: 20142261
ClinicalTrials.gov ID: NCT01875640
To cite this document, please use: Sandberg D, Gardner M, Callens N, et al. Helping Caregivers of Children with Differences/Disorders of Sex Development Decide on Treatment. Washington, DC: Patient-Centered Outcomes Research Institute (PCORI). https://doi.org/10.25302/11.2019.CER.1360