This national summit held in October 2017 in Boston, Massachusetts, convened patients who have experienced vision loss from age-related macular degeneration (AMD), AMD patient caregivers, vision advocacy leaders, vision researchers and clinicians, industry leaders, and patient-centered outcomes research experts to develop an action plan for integrating patient perspectives and values into future research projects and clinical trial design; educating and empowering patients and their families to bring their voices to AMD advocacy; and improving use of current patient-reported outcomes measurement (PROM) tools.
Learn more about the Engagement Award: Summit and White Paper Report: Patient-Centered Outcomes and Age-Related Macular Degeneration
The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.
